Primary Ciliary Dyskinesia
Kartageners Syndrome * Immotile Cilia * Ciliary Aplasia
10137 Portland Avenue South  Minneapolis, MN 55420   (612)386-1261

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This forum is an online informational resource for people affected by primary ciliary dyskinesia (PCD) in all its clinical presentations (e.g. PCD w/situs inversus or Kartagener syndrome and PCD with situs ambiguus or heterotaxy). Caregivers, supporters and others wishing to learn more about PCD are also welcome. This site is casually moderated, meaning moderators will review posts from time-to-time and move, edit or delete posts as needed (please see forum guidelines). Moderators are not medical professionals. The content provided on this forum is informational only and does not replace medical advice. Do not make any changes to your treatment regimen without consulting your personal physician.

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     . . . . . . . . . . PCD Diagnosis . . . . . . . . . .
    Clinical Symptoms and Diagnosis of PCD - - Private
    Ciliary Biopsy - - Private
    Nasal Nitric Oxide - - Private
    Assessing Ciliary Structure and Function - - Private
    PCD Genetics - - Private
     . . . . . . . . . . PCD Clinical Management . . . . . . . . . .
    Pulmonary Issues in PCD - - Private
    ENT Issues in PCD - - Private
    Situs and Heterotaxy - - Private
    Fertility Issues in PCD - - Private
    Miscellaneous or Rare Clinical Issues in PCD - - Private
    Medications Prescribed in PCD - - Private
    Advanced Lung Disease and Transplants - - Private
    Parent Concerns - - Private
    Teen and Young Adult Issues - - Private
     . . . . . . . . . . PCD Life Management . . . . . . . . . .
    Insurance and Access to Care
(State/provincial programs for children, private organizations, etc.)		 - - Private
    Disability and Social Services - - Private
    PCD and School
(IEPs, state level assistance for children with health care needs)		 - - Private
    Caregiver Support and Resources - - Private
     . . . . . . . . . . PCD Misc & Resources . . . . . . . . . .
    Member Introductions
A place to introduce yourself to the group.
(Note: This is a non-reply forum. Please post questions in the appropriate forum above.)		 - - Private
    PCD Foundation Announcements - - Private
    Q&A On Using the Forum - - Private
    Trusted Outside Sources - - Private
    Moderator Only - Communications - - Private
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Threads: 124, Posts: 286
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PCD Foundation � 10137 Portland Avenue South � Minneapolis, MN 55420 � (612)386-1261
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